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mastodon.nzoss.nz is one of the many independent Mastodon servers you can use to participate in the fediverse.
This is a mostly te reo Māori and English language instance, for folks in Aotearoa New Zealand. We talk a lot about openness, technology, and improving our society. Helping folk associated with Aotearoa New Zealand engage in the Fediverse since 2017.

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#cysticfibrosis

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Faraiwe

Russell #Vought is one of the main authors of #Project2025, the #nazi movement guidebook for MAGAts.

His daughter suffers from #CysticFibrosis.

She was treated by a drug, #Trikafta, developed by Vertex Pharmaceutic, under a grant by the National Institute of Health, US/DoH/NIH.

Project2025 is dismantling the #NIH.

But it's ok. Vought already got what he needed.

motherjones.com/politics/2025/

MAGAts are NOT human, have no souls, can not be saved, are burnt meat.

2/2

Mother JonesProject 2025 is gutting medical funding that helped Russell Vought's own kidIts architect's daughter has cystic fibrosis—and benefits from a "miracle drug" backed by an agency he's attacking.
#TurdReich
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Andrew Bartlett

I don't remember which open source conference it was ( or OSDC), except being in Auckland, but I certainly remember the touching video and the positive attitude of the young women with despite such incredible hardship.

It is too many years later, but it really brought a tear to my eye to read that the critical drug suffers need to live a much more normal life is finally to be funded here in NZ by

stuff.co.nz/national/health/13

Stuff'Historic moment' as Pharmac strikes deal to fund cystic drug Trikafta Pharmac has struck a deal to fund Trikafta, which those with the lung disorder say will change the lives of hundreds of Kiwis.
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